Carer Conversations
Dementia Support Australia and the Australian Frontotemporal Dementia Association are working in partnership to develop and run a nationwide network of proactive groups called Carer Conversations. Designed for carers who are supporting someone living with frontotemporal dementia (FTD), the groups are an opportunity for you to meet virtually with other carers .
The groups are facilitated by health professionals with expertise in FTD and consultants from Dementia Support Australia who provide specific tailored advice on behaviour support for the changes that may be occurring as a result of this diagnosis. Run once a month, Carer Conversations are a safe space for you to share and learn.
We encourage you to register your interest below so we can enrol you in a program in your area via the online form.
Dementia Support Australia in partnership with Australian Frontotemporal Dementia Association (AFTDA)
AFTDA is a registered non-profit carer support organisation with a mission to:
- Establish and support Australian carer support groups for frontotemporal dementia (FTD) and related younger-onset dementias.
- Provide information, education, and support to those diagnosed with FTD and related disorders, their carers and families.
- Educate and work with clinicians to reduce diagnostic delays and improve outcomes of individuals with FTD.
- Advocate with government, peak dementia bodies and organisations for affordable quality care services for people with FTD, and support research and treatments in FTD.
- Increase public awareness about FTD and the needs of those with lived experience of FTD.
- Facilitate the international exchange of ideas with FTD researchers and clinicians.
DSA and AFTDA want a world where FTD is understood, effectively diagnosed, treated, cured, and ultimately prevented. For more information about frontotemporal dementia, please visit the AFTDA website.
Learn more about the program
What is frontotemporal dementia (FTD)?
Frontotemporal dementia (FTD) is an umbrella term used to describe a group of younger onset neurodegenerative conditions which can impact anyone, but more typically affects people in their 40s, 50s, and 60s. Carer Conversations is your place to meet and share your experiences in a facilitated group setting.
Related resources
Frequently Asked Questions
Is there a program in my local area?
Carer Conversations is an online program, which means you can access it remotely from anywhere with an internet connection. There's no need to travel to a physical location. You can join from the comfort of your own home or wherever is convenient for you. All you need is a computer, tablet, or phone capable of joining video calls.
Can I still receive NDIS and DSA supports?
Definitely! This group is supported by DSA but doesn’t impact any of your other support or care packages you might be receiving. And it’s totally free!
My family member has only just received a diagnosis – is this the right group for me?
We will work with you to understand your specific needs before enrolling you in the group. It might be the right time for you to join – but if it isn’t our team can support in other ways and when you’re ready we’ll be here.
Is there a time limit on how long I can attend Carer Conversations?
No. We understand that the experience of caring for someone living with FTD is different for everyone. You might need our support for a short time or a long time. We work with you along your journey.
Where can I find more information?
To learn more about Carer Conversations, please download the flyer from the link below.
Who is eligible to join Carer Conversations?
To participate in Carer Conversations, you must meet the following criteria:
- The person you care for has been diagnosed with FTD or displays features that align with an FTD diagnosis.
- You are an unpaid primary carer, such as a family member, partner, spouse, child, or close friend.
- You provide consent to participate in the group and agree to the group terms.
- You have access to a computer, tablet, or phone with the ability to join video conference calls.
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